Heartfelt fundraiser for Crieff's Joshua

Nicole Reid • Published 3 Jul 2012 09:30

More than 100 guests attended helping to raise £4000 for the charity which was set up by Crieff couple Nicola and Stephen Deeth after their second son, Joshua, died aged only three months, from the rare neurological condition pontocerebellar hypoplasia.

The guests were piped in to the Academy Hall by local piper Craig Sutherland and the MC for the evening was Martin Revie who did a fantastic job of entertaining the guests.

Games took place after a heart felt presentation on the work of the charity and a chance for the guests to see a photo slide show and of some of the children that they were there to support.

The Lomond ceilidh band did a great job of getting all the guests up dancing all night and the auction rasied over £2000.

Nicola told the Strathallan Times: "We were very kindly donated such fantastic prizes by lots of local businessesfor the auction and raffle and we would like to thank them all.

"We would also like to thank everyone who attended on the night to support Joshua's Foundation and helped us raise £4000. Also thank you to everyone who helped on the night.

"A special thanks to local Crieff photographer Dave Jack from Space 21 who very kindly donated his time to come along on the evening  and take photographs on the night."

 Nicola and Stephen set up the charity in his memory of their son and to help other families affected by PCH.

This rare neurological condition attacks the brain and spine. There are six types of the condition with children all affected with various strains. Joshua had PCH Type 1 which is the most aggressive of them all.

The Crieff duo have also set up the Care and Support Grant which families can apply for to use to buy equipment for their home, photo sessions, day trips and many other worthwhile things.

This year they launched The Joshua Deeth 100 Club where they are asking 100 people to each volunteer to raise £100 in 2012 to help them raise £10,000 to fund  an information booklet on the condition.

Nicola added: "We are currently the only known UK charity to specifically support families with PCH and there is no information leaflet available in the UK on this condition.

"We plan to fund this which will have the most up to date information on the condition and will contain many families stories who are living with PCH. This booklet will be available free to download on our website, or post and we will be distributing to UK hospitals and many hospitals overseas."

If anyone would like to get involved visit www.thejoshuadeethfoundation.com or email nicola@thejoshuadeethfoundation.com. 

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